Project for: patient partner living with or caring for someone living with MS, Lupus, SMA, Hemophilia, or AMD

A Direct Seat at the Table: This is a rare opportunity to speak directly to the global access leadership team—the exact people who design affordability programs and negotiate with healthcare systems. Your words will directly influence the people who make the big decisions.

Turn Your Hurdles into a Roadmap for Others: Navigating a complex diagnosis is incredibly difficult. By sharing the roadblocks you’ve faced, you can help us ensure that future patients and families don't have to fight the same exhausting battles just to get the medicine they need.

Make Healthcare More Human: Your story will remind our team exactly why we do this work. It shifts our focus from spreadsheets and policy documents back to what truly matters: helping people live healthier, easier lives.

Our Promise to You: We aren't looking for a polished corporate presentation or a medical expert. We are looking for your truth. We promise to listen with deep respect, to value your time, and to integrate your insights to actively break down the healthcare barriers that hold people back.

Estimated Time Commitment:
Preparation: ~3 hours:   30-minute orientation meeting with the access planning team, 30-minute review of the draft questions for the leadership interview, and 2 hours to prepare your thoughts for the session
Session: ~60 minutes:  The session will be 20-25 minutes in length (arrive 15 minutes before and stay for 15 minutes after the talk).

Timelines:
Orientation session: early July
Question review: end of July/August
Session: September 15 (am)

Please note: We are looking for English-speaking participants living in or near Basel/Switzerland

If you are interested in participating in this project, please reach out directly to: Lisa Petermann - [email protected]